The Molly Johnson Foundation was founded by Robin and Jojo Johnson in honor of their daughter Molly who passed away November 2nd 2007. Molly was born with a rare genetic disorder named Wiedemann – Rautenstrauch Syndrome, a neurological condition diagnosed in less than 100 children worldwide. Children born with this condition are affected by many different characteristics such as small in stature, poor growth and development, depressed respiratory system, all stemming from the lack of neurological development.
Reason for the Foundation: Through their own experiences of raising 2 special needs children, the Johnson family understands the many obstacles and challenges that families of special needs children are faced with. Often with these families the proper medical equipment can make a huge difference in the quality of life for the special needs child and the family as a whole. The Johnson family faced these types of situations often and have a strong desire to help other families overcome similar issues.
The Molly Johnson Foundation was created to assist families of special needs children in a variety of ways. These families often have needs from financial needs to lack of medical equipment and many other challenges to overcome. The Molly Johnson Foundation desires to make a difference in these families lives the best way possible.
Our Mission statement is “to make a difference in the lives of special needs children and their families.”
Board of Directors
Robin Johnson – President
Jojo Johnson – Vice President